Caregiving Resources
It is estimated that there are more than 50 million family caregivers in this country providing 80% of home care services. Caregiving is especially challenging for those coping with terminal illness and facing end-of-life decisions. It's important for healthcare professionals to understand the unique needs of family caregivers and assist them in ways that will provide support and understanding.
Order the companion book, Caregiving and Loss: Family Needs, Professional Responses. View the Table of Contents.
Publications
- Supporting Your Friend through Illness and Loss
- Caring for Someone Who is Dying
- A Caregiver's Guide to the Dying Process
Many people who are caring for a terminally ill person have never done it before. This guide prepares caregivers by discussing both the physical symptoms of dying and the psychological issues that accompany the dying process. It may also be used by hospices and other end-of-life organizations as a helpful training aid for staff and volunteers. HFA's Year 2001 initiative companion book, Caregiving and Loss: Family Needs, Professional Responses
Tools
- Meuser and Marwit Caregiving Assessment
PDF
In the 2004 HFA teleconference, the panelists discussed the need to develop and expand the use of clinical tools to assess grief and bereavement in family caregivers of Alzheimer's patients. One such tool is the Caregiver Grief Inventory developed by Samuel Marwit, University of Missouri--St. Louis, and Thomas Meuser, Washington University School of Medicine.
Articles
- What Caregivers Need from Doctors - William Lamers, MD
- Hospice as a Model for Caregiving - Marcia Lattanzi-Licht
- Hoping This Could Be Somebody Else's Life - © 2001 Elizabeth Halling
- Conclusion - So What Do We Do? - Joyce D. Davidson
- Caregiver Fairs: Support in Action - Susan Reinhard
