Friday, September 28, 2007

Memory Bears Help Families Remember Their Loved Ones



Hospices around the country have found that creating a memory object can be very beneficial to a bereaved family. Participants in HFA's 2007 teleconference, Living With Grief: Before and After the Death, learned about Memory Bears—teddy bears sewn by VITAS hospice volunteers using a piece of clothing or other material from a loved one who has died. The video clip above is of a hospice volunteer who makes the bears for bereaved families.

Other hospices have made Memory Quilts to remember loved ones. Harry Hynes Memorial Hospice in Wichita, Kansas created a beautiful woven tapestry to memorialize lost loved ones. The tapestry won HFA's Call for Artwork contest for the cover of its 2007 Living With Grief book. The contest is now underway for the 2008 book cover, Living With Grief: Children and Adolescents.

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New Social Networking Sites Cater to Caregivers

The New York Times (9/12/07) highlights the growth of social networking sites that cater to users older than the users of typical social networking sites such as Facebook and MySpace. These networking sites allow people to connect with others in their generation, share interests, and remain active.

Other websites help family members assisting aging loved ones. AGIS (AssistGuide Information Service) has a new website for family members looking for information and assistance with eldercare and other issues. The AGIS forums discuss topics such as caregiving, grief, Alzheimer's and dementia, and much more. These new websites address an aging population in two ways: by empowering seniors through social networking, and by assisting families in meeting the needs of their aging family members.

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Thursday, September 27, 2007

Eight Myths about Children, Adolescents, and Loss

Note: This article by Kenneth J. Doka, PhD, is featured in the Helping Young People issue of Journeys - A Newsletter to Help in Bereavement. Journeys is published monthly by Hospice Foundation of America.


Myth 1. Children do not grieve, or only grieve when they reach a certain age. Children grieve at any age. The way grief is manifested will vary, depending on the child’s age, development and experiences. It is important to remember that children may grieve in ways different from an adult.

Myth 2. The death of a loved one is the only major loss that children and adolescents experience. Children and adolescents experience a range of losses. The loss of a pet, dreams, separations by divorce or relocations, losses of friends or relationships, or losses due to illness or death can generate grief reactions.

Myth 3. It is better to shield children from loss. They are too young to experience tragedy. Although we’d like to protect children from loss, it is impossible. Exclusion can increase fears and breed feelings of resentment and helplessness. It may isolate the child or adolescent at a time when they need the support of adults most.We can support, teach and model our own ways of adapting to loss and include rather than exclude children and adolescents.

Myth 4. Children should not go to funerals or children should always attend funerals.
Children and adolescents should have the choice as to how they wish to participate in funeral rituals. They will need information about the funeral, options on how they may participate, and support from caring adults as they make their choice.

Myth 5. Children get over loss quickly.
No one gets over significant loss. Children, like adults, will learn to live with the loss and may revisit that loss at different points as they go through life.

Myth 6. Children are permanently scarred by early, significant loss.
Most people, including children, are resilient. While loss can affect development, solid support and strong continuity of care can assist children as they learn to live with loss.

Myth 7. Talking with children and adolescents is the most effective approach in dealing with loss.
While there is much value in openly communicating verbally with children and adolescents, there are approaches that allow the child or adolescent creative ways of expression. Play, art, dance, music, activity and ritual are examples of creative modes of expression that they may use to express grief and adapt to loss.

Myth 8. Helping children and adolescents deal with loss is the responsibility of the family.
Families do have a critical responsibility. But it is a responsibility shared with other individuals and organizations such as hospices, schools, faith communities, as well as the community at large. In times of significant loss it is important to remember that the ability of family members to support one another can be limited.

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Tuesday, September 25, 2007

Grief Camp Offers Support for Children of Deceased Military Personnel

The Seattle Post Intelligencer published an article about a TAPS camp (Tragedy Assistance Program for Survivors) for children of military personnel who have been killed in Iraq and Afghanistan. Sixty-two families in Fort Lewis took part in a day-long program that offered bereavement support for both adults and children. Learn more about TAPS and their role in support military families through grief on their website.

HFA's 2008 teleconference and book, Living with Grief: Children and Adolescents, will focus on the experience of grieving children and adolescents and how we can best support them during this time. "Military Children and Grief," written by a TAPS peer mentor, looks at how loss for children in the military community is different.

Published September 23, 2007

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Giving Culturally Sensitive Care

An article in AsianWeek focuses on the difficult issue of communicating with someone experiencing dementia, compounded by what may be very different cultural beliefs about illness and health care.

Published September 21, 2007.

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The Role of Hospice for Patients and Families

The Daily Siftings Herald is publishing a series of articles about the Baptist Health Hospice in Arkansas. The director of the hospice, Barbara Stewart, talks about the program and the role of hospice in end-of-life care.

If you are interested in learning more about hospice, read HFA's informative review on hospice.

Published September 24, 2007.

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Family Structure Can Affect Grief

With more and more U.S. single parents, blended families and step and half-siblings, some are "shut-out" of an illness or funeral, a U.S. expert said. Diana Nash, a professor of psychology at Marymount Manhattan College in New York and a counselor specializing in grief and bereavement, said ex-spouses and first children of the deceased can be left out of an illness and funeral because the new family doesn't want them around.

Published September 24, 2007.

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Monday, September 24, 2007

Children as Caregivers, the Burdens Placed on Kids with Chronically Ill Parents

This in-depth piece by Washington Post reporter Michael Alison Chandler looks at the role more and more children are playing as caregivers for their chronically ill parents. Chandles sites a 2005 survey by the United Hospital Fund and the National Alliance for Caregiving that shows as many as 1.4 million children in the United States from age 8 to 18 care for a chronically ill or disabled relative. The burden of caring for ill parents is having a huge effect on these children, and there are few public services to offer needed assistance.

Published August 25, 2007

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The Words We Use to Describe Caregiving

Sharon K. Brothers, MSW, blogs on the "Caregiver's Language of Caring" and how words reflect a caregiver's feelings about the people they care for. Her blog, Caregiving at the Crossroads, offers a personal look at caregiving training.

HFA's Caregiver's Corner offers tools and support for caregivers at each step of the caregiving journey.

Posted September 4, 2007

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The Physician's Role at the End-Of-Life

American Medical News published an article about the physician role in offering comfort to a terminally ill patient. The article discusses a variety of studies that have shown that greater communication by physician can help patients dealing with a terminal illness and help families through bereavement. Doctors who remain more distant can leave families feeling abandoned.

Learn more about the role of caregivers in preparing for the end-of-life from HFA's 2007 Teleconference, Living With Grief: Before and After the Death.

Published September 3, 2007

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Tuesday, September 4, 2007

Palliative Care for Children

MDLinx reports findings of a qualitative study investigating nurses involved in arranging children's palliative care services.

HFA's 2008 Living With Grief teleconference will focus on children and adolescents. Learn more here.

Published August 30, 2007.

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