Thursday, July 24, 2008

Vigil Companion Programs - So No One Dies Alone






Vince Chiles
Vince Chiles
As a hospice social worker and supervisor, I have witnessed the myriad of family dynamics played out at the end of life. The love, the sadness, and the struggle for acceptance of an approaching death is seen through the relationship between husbands and wives, brothers and sisters, parents and their children. And then, there are those who outlive their support systems. They often find their way onto hospital wards in the last days or hours of life, and are literally all alone. Some may muster a request for companionship in the last moments of life from a nurse, who due to the constraints of her patient load, can only stay a moment or two before rustling off.

Such was the experience of Sandra Clarke, a critical care nurse at the Sacred Heart Medical Center in Eugene, Oregon. Ms. Clarke was asked to stay by a dying patient. She had to finish her other duties, and when she returned her patient had died. Troubled by this lonely passing Clarke was inspired to start ‘No One Dies Alone,’ a vigil volunteer program that provides companionship to those who have no one in the last moments of life.

Hospice volunteer programs have been providing vigil companions to their patients for decades in the absence of families when commitments or distance keep them away. But for hospice to occur the patient or a surrogate has to consent to the care. These faculties or resources are not always available to patients, who either through longevity of life, estrangement, or distance, have no one. Some of our most frail fellows are completely alone. That’s where programs like Sacred Heart’s ‘No One Dies Alone’ and other vigil companion services come in. They are volunteer programs that are often run by medical facilities whose mission it is to provide a compassionate presence to those who have ‘No One.’

The philosophy of the vigil companion programs is to provide an empathetic witness to the transition that occurs with death. They assert that because no one comes into life alone in the best of situations, no one should leave alone either. As a result of this care philosophy volunteers are available around the clock to sit with those who need this desperate company whenever necessary. Nurses are the eyes and ears of these services, identifying the need through their clinical insight and intuition. They notify the coordinators who in turn alert the volunteers of their duty. Volunteers may sit in silent reflection, play soft music, or provide a gentle touch of comfort. They are trained to alert the medical staff of any problems or concerns that might arise. The service may lesson the effects of complicated grief for distant family members or staff. Overall, vigil companion services reinforce the patient’s dignity and worth of companionship in this most vulnerable time. When provided well these services assure ‘No One Dies Alone.’

Reference: No One Dies Alone, Sandra Clarke, CCRN; Summer 2002 (Vol 8, No.3) Supportive Voice, the official newsletter of Supportive Care of the Dying: A Coalition of Compassionate Care.

Vince Chiles, MSW

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7 Comments:

Blogger Christian Sinclair, MD said...

It is also important to note the patients who have chosen isolation and being alone for many reasons and to respect and honor those wishes if they are so desired. Sometimes I encounter staff or volunteers who feel we 'have to be there' for this patient when in fact on closer examination the person would likely have refused such a presence.

It doesn't happen often but it is important to be aware when it does.

July 24, 2008 6:10 PM  
Blogger Christian Sinclair, MD said...

Could you clarify your meaning with thiq quote:

"But for hospice to occur the patient or a surrogate has to consent to the care. These faculties or resources are not always available to patients, who either through longevity of life, estrangement, or distance, have no one."

When a patient cannot consent, a surrogate can always be found. It may not be a relative or friend, and therefore it may fall to the legal system, or it may be a medical decision based on 'best interests' after consultation with a hospital ethics cmte and hopefully anyone with some knowledge of the patient's values, and wishes. It seems wrong to have medical goals of comfort care only, but refuse to sign someone into the Medicare Hospice Benefit because a surrogate is not immediately available.

And in this situation a palliative care team may be helpful and many coordinate with the hospital volunteer programs like the one at Sacred Heart.

It would be nice to have more programs like this around.

July 24, 2008 6:15 PM  
Blogger Krista Renenger said...

Responding to your first comment -- agreed. Patient autonomy is a fundamental tenant of ethical health care and is a value held in high regard when it comes to hospice care. Vigil companions are appropriate in some but not all cases, as Dr. Sinclair states. Some patients choose to die alone. Nevertheless, for dying patients who want someone nearby, vigil companionship is a wonderful option for those whose family or friends are not present.

July 25, 2008 9:27 AM  
Blogger Vince Chiles said...

I agree that some patients may want to die alone. That's why it is important that health care facilities and advocates assess patients wants and wishes so that in the event of their death these wishes can be respected.

Dr. Sinclair brings up a very interesting comment in regards to consent for hospice care. Facilities can advocate to move patients into the hospice benefit if there is no surrogate. Unfortanely this process is not always understood by the medical professionals who make the referral nor does the patient always possess the time for these types of proceedings to occur. As a result programs like vigil companions can assure added dignity and comfort to patients in the last moments of life.

Thanks Dr. Sinclair for your excellent comments!

July 25, 2008 10:13 AM  
Blogger Vince Chiles said...

This post has been removed by the author.

July 25, 2008 11:37 AM  
Blogger Vince Chiles said...

A point that seems to need some clarification regarding my post is the use of the word 'facility.' When I refer to 'facility' I am referring primarily to hospitals or other care facilities such as nursing homes and the hospice agency.

July 25, 2008 11:44 AM  
Anonymous williamrichard said...

Vince Chiles is a social worker.He treats everyone like his brother and sister.They conduct volunteer programs and serve people in many aspects.
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williamrichard

Maryland Drug Treatment

August 19, 2008 9:33 AM  

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