As
you go through life, you and the people you care about will experience
illness and other losses. Challenges
brought on by illness or loss affect not only the person who is experiencing
it, but also family members, friends, co-workers and all who are touched by
his or her life.
As
a friend you too will be affected, because it will change the nature of your
relationship. You may feel powerless and helpless, wondering how to respond,
how to assist. These
conflicting feelings may lead you to avoid your friend, beginning a terrible
cycle of guilt or assumptions. "I haven't called or said anything in so
long, she'll be upset with me if I do it now."
Whether a friend is ill or caring for someone who is, they may have
to give up treasured activities, things you shared or did together.
They may have less energy, time, or even income.
All of these circumstances may spark many feelings for you such as
sadness, anger, guilt or anxiety.
Being
a good friend during times of crisis can be a challenge.
Stories and guidelines inside this pamphlet can help.
"Oh
Jules." Nina said softly. She
didn't know what to say. "I
am so sorry." She added. "I
am so sorry." She said again, afraid to say much more.
Venture
You
may often feel inadequate because you do not know what to say or even
whether it is appropriate for you to say anything. Sometimes, you may
honestly want to know how your friend is doing, but then wonder if you
should how or if you should ask. You
may feel like if you say something it will bring up or create sad feelings.
When
someone is experiencing illness, loss, or caring for another who is, he or
she is always aware of it. So, it is best always to venture
- to acknowledge and to offer opportunities for conversation. A
simple, "I am sorry or how are you doing?" can convey your empathy, and
show your interest and concern. After that initial response, follow the
person's lead. Recognize that
sometimes, individuals will need to talk about the experience while other
times they may wish to avoid addressing caregiving, loss, or illness issues.
They may prefer, at that moment, your normal conversation.
Cynthia sighed.
Today had been a hard day for her husband Sean who was suffering from
ALS. The nurse had called
Cynthia at least ten times, and each time Cynthia felt a searing sense of
guilt. Even though she knew she
needed the full time job, it still hurt to be away from him during the day.
A quick knock on
the door interrupted her thoughts and she looked at the clock.
It was time for Sadie, her boss' secretary's short visit, and
Cynthia smiled. She felt guilty for looking forward to Sadie's hilarious
monologues about their boss each day. But
now, it really was her only moment of normal conversation.
She was grateful Sadie could provide that brief but needed reprieve.
"Bill,
I'm a little confused. I
thought you were going to handle that Longnecker Account?"
Raul said casually to his business partner before the staff meeting.
Bill
exploded. "No, I handle most of the accounts so I thought my partner
would have the courtesy to take on one. I wish you would learn to handle
something, I'm sick and tired of having to carry this entire business all
on my own!" he shouted. He
stormed down the hall and slammed his door.
Raul was shocked.
He and Bill were old college friends and had maintained a respectful
working partnership for over 15 years.
But now, Bill's 9-year-old daughter had cancer.
So when he started canceling their weekly lunch meetings, and became
more sullen and removed, Raul understood.
Raul
looked at his embarrassed employees. He
couldn't believe Bill would chastise him in front of them.
He felt anger start to rise into his chest and took a deep
breath. He knew his friend was
depressed. He thought about his
own children and how he would feel if any of them were sick.
He
walked down the hall towards the office.
He had a feeling that Bill needed to talk.
Validate
When
a friend has an illness, that person will struggle with many feelings. She
may feel angry, guilty, sad or lonely. He may experience fears and
anxieties. "Will I get through the operation?
How tough will it be? What will I have to struggle with down the
line?" He may grieve the losses he has already experienced - losses of
dreams, health, perhaps even financial stability.
Caregivers
too, will struggle with difficult feelings. They may be anxious or fearful.
They may feel burdened and resentful. They may feel guilty.
They, too, may experience that sense of loss of hopes, independence
and security. They may face painful decisions about how to best care for the
person or when they will cease curative treatment.
One of the greatest gifts that you can offer is a safe place for that
person to express and discuss fearful feelings. It is not enough just to
listen, you need to respect and validate
the feelings, fears, and sad thoughts.
Often,
it seems easier to try and "fix" these feelings.
Saying things like "You need not be scared," "You shouldn't
feel guilty," "Think of the good times." Can be well meaning.
However, these types of statements may only serve to discount the
real feelings that your friend has, often isolating that person further.
It
is important to respect those fears, to understand that they are real and
cannot simply be dismissed. Rather
than saying "You should not feel guilty, angry or afraid," let the
person express those fears and feelings. "What makes you frightened" or
"I understand you're angry," allows individuals an opportunity to
further explore their feelings. It
also provides them with space to decide what they need to do to best handle
their reactions.
Give
them that space to explore their thoughts and process the decisions they
must make. Avoid being judgmental or sharing what you would do, or what you
experienced. Share advice when asked, but mostly listen.
The minister sat down.
Helping members of his congregation cope with tragedy was always
extremely difficult. The
Carson's 16-year-old son had been disabled in a car crash last night.
"I don't care what you say," Mrs. Carson said before he even
spoke. "Don't talk to me
about God, I'm really angry at Him right now!"
The minister sighed. He
only had one answer and he took a deep breath. "I am very angry with Him too," he said quietly.
Volunteer
One
of the most important things that you can do for a friend who is coping with
illness or loss is to help in tangible ways. It is not enough to simply say,
"Is there anything I can do?" A person living with illness, or caring
for someone who is may be too
stressed to consider how you might help or may believe your question to be a
caring polite comment rather than a real request.
It
is most helpful to volunteer to do
specific things. " Can I watch the kids while you go to chemotherapy?" or
"Why
don't I come over and sit with your mother for the night, so you and John
can go to a dinner or a movie?" Tangible
acts such as cooking food, helping with chores, assisting in caregiving, can
mean so much to friends in crisis.
"My sister was like a small
godsend," Lori told her cancer survivor group. "She arranged for neighbors to do small things like mow the lawn or
drop off dinner. That helped
ease our isolation. But on
chemotherapy nights, she'd come over and make a grand Italian dinner for
the kids. She called
it "Auntie Night" and ended
it with a pillow fight and a
story in their room before bedtime. Now
it's a memorable tradition for her and my kids."
You
may find that when you are able to venture, validate and volunteer for a
friend in need, you will come to the fourth v - which is value. By being a friend to someone
coping with illness, whether
their own or a loved one, you can demonstrate the value of your friendship
through your compassion and concerns.
Nina tossed the rest of her
mail on the table and opened the small envelope. It was a short note from Julia.
"Dear Nina, I just wanted to send you a short note to thank you for
your support. I've learned so much about friendship, and I feel that our
relationship is stronger. I
know it's been hard to know what to say or what to do.
But, your presence and kindness is exactly what we need.
I wanted you to know that it's given our family some value to what
has been a very difficult time."
Here are some suggestions that may help, taken from the experiences of
hospice patients:
BE HONEST WITH ME. I
can tell when your feelings or actions are insincere.
LAUGH WITH ME, CRY
WITH ME. Allow me to express intense emotions.
DON'T FEEL SORRY
FOR ME. Your understanding helps preserve my dignity and pride.
TOUCH ME. I want to
be accepted despite the way I may look. Inside, I'm still the same person
you always knew.
LET ME TALK ABOUT MY
ILLNESS IF I WANT TO. Talking helps me work through my feelings.
LET ME BE SILENT IF I
WANT TO. Sometimes I don't have much energy and I just may want your
silent companionship. Your presence alone can be comforting.
SPACE YOUR VISITS AND
CALLS. Consistent support is very helpful.
OFFER TO BABYSIT The
children need a break from my illness, and private times with my spouse are
treasured.
SUPPORT MY FAMILY. I
may be very sick, but they too are suffering. Let them express their grief.
OFFER TO HELP ME WITH
THE SIMPLE CHORES.