Hospice Foundation of America
E-Newsletter
Volume 5, Issue 12
December 2005
http://www.hospicefoundation.org
In this issue:
Message from David Abrams, President
In response to readers’ suggestions, we
are enhancing the HFA E-newsletter with two new features, beginning with
this issue: NEWS FROM THE HOSPICE WORLD and UPCOMING CONFERENCES. We
hope you will send us information that you are aware of, and believe
should be shared. The orientation of the HFA E-Newsletter centers around
items of interest nationally. Therefore, conferences and news items
should be geared toward a national audience. We look forward to your
input and comments as we develop these two additions to our newsletter.
Please send suggestions to
lveglahn@hospicefoundation.org
If you are intending to organize
a site for the 2006 teleconference, but have not yet registered,
please
be sure to take advantage of the significant discount on materials fees
available only until January 15th.
Back to top
Focus on: Interview with Jack
D. Gordon, Hospice Foundation of America
Jack D. Gordon was the pioneering force behind HFA’s
National Bereavement Teleconference, the nation’s largest
distance-learning satellite broadcast program. This year’s program,
focusing on Pain Management at the End of Life, falls within the Decade
of Pain initiative that has been set by Congress and organizations
interested in issues of pain management.
In this interview,
Senator Gordon discusses the
special skills that hospice professionals bring to this issue; some of
the common barriers to good pain management; and his vision for the HFA
teleconference. [Note: Mr. Gordon served as Chairman and CEO of HFA
until his death in 2005.]
Back to top
Holiday Journeys
We want to remind all our readers about the Journeys
Holiday Issue. This special issue of HFA’s bereavement newsletter is a
nice way for you to let your clients, donors or others in your community
know you’re thinking about them during the holiday season. The 2006
Holiday Issue features two new articles: Holiday Survival Strategies, by
Judy Tatelbaum and Home for the Holidays, by Paul Irion.
HFA’s special Journeys issues regularly sell for 25
cents per copy. We’re offering a special price of 20 cents per copy for
orders of 25 or more of the Holiday Issue.
Orders at this special price must be received by
12/16/2005.
Back to top
Update on HFA Katrina Relief Efforts
Hospice Foundation of America (HFA) has donated
$18,000 to help Louisiana and Mississippi hospices recover from
Hurricane Katrina. Hospice Foundation of America’s unrestricted grant to
the Louisiana Mississippi Hospice and Palliative Care Organization (LMHPCO)
represents all funds collected to date by HFA for relief of disaster
caused by Hurricane Katrina. It includes an equal, 1:1 match of external
funds from HFA’s general fund.
“We are committed to helping hospices affected by
Hurricane Katrina,” said David Abrams, HFA President. “Hospice
Foundation of America, with offices in Miami, has endured the wrath of
many hurricanes, including Hurricane Andrew and most recently Hurricane
Wilma. On behalf of hospice patients and families, and the hospices that
care for them, we felt compelled to react swiftly to the damage caused
by Katrina.”
Immediately after Hurricane Katrina struck, HFA issued
an offer of help to Gulf region hospice organizations. The Foundation’s
efforts included:
- purchasing a satellite phone to facilitate
communication for the states’ hospice organization;
- setting up a patient-locator area on the HFA
website (www.hospicefoundation.org) to help reconnect families and
hospice patients; and posting a special Katrina Designation section
on its donation webpage so that donors could ensure that their
donations would go directly to hospices affected by the hurricanes.
Regarding the satellite phone, Jamey Boudreaux,
Executive Director of LMHPCO, told HFA, “You all have been there for me
during the entire storm. I was looking for a satellite phone and you
came through with [it] immediately—it was a comfort to have knowing that
if everything else failed, that would be there.”
Boudreaux also told HFA that they have received an
estimated total of $90,000 in donations. They are issuing $500 checks to
hospice patients and hospice employees whose homes have been destroyed
or severely damaged by Katrina. Many of these checks arrived before FEMA
checks and insurance settlements. Boudreaux says that besides the
generosity that Hurricane Katrina has spurred throughout the country,
“The disaster relief fund is really bringing hospice providers
together—we now are having meetings of all hospice providers along the
Gulf Coast.”
Back to top
Pain Management at the End of Life
As part of HFA’s Living With Grief®
Series, HFA will publish a book on Pain Management at the End of
Life: Bridging the Gap between Knowledge and Practice in conjunction
with the 2006 teleconference. Edited by Dr. Kenneth J. Doka, the book
will feature articles by prominent experts in the areas of the
experience of pain; the assessment and management of pain; and societal
issues in pain management and control.
Unlike palliative care in adults, the
treatment of pain and other forms of suffering associated with
life-threatening disorders in children has only just begun to be
explored. Authors Rebecca Selove, Dianne Cochran, and Ira Todd Cohen
examine the issues that professionals face in this difficult situation
in their chapter, End-of-Life Pain
Management in Children and Adolescents (PDF).
On December 8, Hospice Foundation of
America attended a critical hearing on Chronic Pain, which was
anticipated to take place in January. The House Sub-Committee on Health
held the hearing, “Improving America’s Health: Examining Federal
Research Efforts for Pulmonary Hypertension and Chronic Pain.” Besides
focusing on the need for research for Pulmonary Hypertension, a terminal
heart condition, the hearing also helped illuminate the need for support
of the H.R.1020 bill, which will improve access to information and
appropriate pain care.
The committee heard several touching
and emotional testimonials, including one from Captain Jonathan Pruden,
a soldier who was injured in Iraq and who has learned first hand about
the importance of pain treatment and the challenges of getting pain
treatment.
The American Pain Foundation urges
Americans to take action:
“It is vitally important for your representative to hear from you. Let
him/her know how important it is to you and to millions of other
Americans that there is a focus on and investment in improving pain
care….Submit your testimony to be included in the official congressional
record for this hearing. The deadline is December 15, 2005.”
Please visit
www.painfoundation.org for more information.
If your organization has never hosted a
site for HFA’s award-winning teleconference, we encourage you to
consider doing so this year. Past site coordinators have told us that,
in their communities, the teleconference:
- Serves as a tool to increase
awareness of their organization
- Offers an opportunity to build
relationships with other caregivers, advocates, and community
leaders
- Helps frontline healthworkers,
family caregivers and advocates stay current on end-of-life topics
- Offers an opportunity for low-cost
continuing education credit to nurses, social workers, physicians,
funeral directors, counselors, clergy, EMS workers and others
Need more information about hosting a
site for the teleconference? Check out the
Frequently Asked Questions
section.
Please note: HFA is proud that the
National Association of Social Workers is supporting its 2006
teleconference. NASW’s website was incorrectly listed in a previous
e-newsletter; the correct site address is
www.naswdc.org
Back to top
News from the Hospice World
Covenant
Hospice of Pensacola, Florida announced a significant expansion of its capability to provide
improved care at the end of life to include nationwide management and
leadership coaching and training for leaders interested in improving end
of life care in their organizations. Through a partnership with The Studer Group, Covenant will provide training programs, specialized
consultation services, and an Institute concentrating on end-of-life
issues. Beginning in mid-2006, a series of End of Life Institutes will
be offered throughout the country. The Institutes will be directed at
assisting healthcare professionals improve their leadership and
management skills in the area of end of life, hospice, and palliative
care.
Dale Knee, CEO of Covenant Hospice, said, “This new partnership is a
wonderful opportunity to improve care throughout the nation for
individuals and their loved ones facing end-of-life issues and
challenges, while concurrently improving the leadership skills and
talents of the Covenant staff by the education and training they will
receive by Studer Group trainers.”
The Hastings Center announces the release of a special
supplement on end-of-life care, Improving End-of-Life Care: Why Has It
Been So Hard? featuring essays about the last decade of progress and
change in end-of-life care. The essays focus on bioethics, public
policy, and law, and include reflections on the nature of death in
America, the usefulness of advance directives, and the place of personal
autonomy in healthcare decisionmaking. A briefing on the report, and on
how to make use of its conclusions, was held in Washington, D.C. this
fall. The full report may be downloaded from
The Hastings Center website.
Individual copies may be ordered by emailing
publications@thehastingscenter.org
or writing to: Publications Department, The Hastings Center, 21 Malcolm
Gordon Road, Garrison, New York, 10524. Mail order copies are $18.00
postpaid.
Back to top
Upcoming Conferences
Health Action 2006 is being organized by Families USA,
the national health consumer group, in cooperation with a wide range of
national organizations, including HFA. This annual grassroots conference will take
place in Washington DC, January 26-28. Registration is $275 until
January 6. After that date registration is $325. (This fee includes
three lunches, three continental breakfasts, snacks, a performance of
the Capitol Steps, a dessert party, and lots of useful written
material.)
For more information, go to
Families USA website, call
at 202-628-3030 or email field@familiesusa.org.
Back to top
Site Coordinator's Corner
Registration is now available online for hosting a
teleconference site! The site registration fee is only $20 for Site
Coordinators who register before January 15th. And remember--Continuing
Education Unit credits are available for a wide range of professionals
for HFA’s teleconference. In order to take advantage of the continuing
education component of this program, you must register your site with
HFA.
New this year: Site Coordinators are receiving a dedicated special
electronic newsletter focusing on the 2006 teleconference. If you have
registered for this year’s teleconference and have not begun receiving
yours, please contact Kristen Baker at
kbaker@hospicefoundation.org
Back to top
This newsletter is sent to more than 6,400
subscribers on the 2nd Wednesday of every month to keep you informed of
what is happening in the fields of hospice, grief and bereavement, and
caregiving.
Hospice Foundation of America is funded by
contributions from individuals, corporations, associations and fraternal
groups, as well as by grants from foundations and corporations. We are a
qualified member of the Combined Federal Campaign, under the Health and
Medical Research Charities of America federation. We encourage you to
forward this e-newsletter to an interested colleague or friend. To subscribe, go to HFA's E-Newsletter sign-up page.
Privacy Statement: In no case will we share
e-mail addresses. See the full text of
HFA's Privacy Policy.
This newsletter is published by Hospice
Foundation of America
Jack D. Gordon, Chairman
David Abrams, President
http://www.hospicefoundation.org/
Board of Directors: Thomas E. Bryant, MD, JD; Myra
MacPherson; Priscilla Perry; Patricia Spulak; Thomas
Spulak
©
Hospice Foundation of America 2005
Go to the E-Newsletter Archives.
Back to Top