HFA's E-Newsletter - February 2012

Volume 12, Issue 2

In this issue:  

Message from Amy Tucci, President and CEO

All of us at HFA were saddened by the recent deaths of two pioneers in the hospice field. Dr. William Lamers was one of the first physicians to develop a hospice program in the United States; he also helped establish the first program to train people to develop hospices. Bill served as a Medical Consultant for HFA for a number of years, and remained a dear friend. He was fond of sharing stories about the early days of hospice. In addition to consulting for HFA, Bill also served as a consultant for Hollywood, which often sought his counsel when it came to depicting end-of-life situations dramatized in film or on television. We interviewed Bill for a past issue of our e-newsletter, and the interview serves as a reminder of his contributions to the field. Read the LA Times story about Dr. Lamers' legacy. 

The hospice community also mourns the death of Mary Labyak, President and CEO of Suncoast Hospice.  In recognizing Mary with the National Hospice Foundation's Healthcare Architect Award in 2011, President and CEO of the National Hospice and Palliative Care Organization, J. Donald Schumacher said, "It's difficult for me to think about advancement and innovation in this field without thinking of Mary."  

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Focus on: End-of-Life Ethics - Landmark Legal Cases

HFA is well underway with its spring Living with Grief® program, End-of-Life Ethics. Available on DVD in April 2012, this program will feature an expert panel and interviews with individuals who have been intimately involved with ethical decision making, as well as experts who have had a part in shaping the ethical and legal standards surrounding advanced illness and death in the United States. The program includes a discussion of some cases that set legal precedents for end-of-life decision making. Bill Colby, who was the attorney for Nancy Cruzan's family and argued a landmark case before the Supreme Court, notes that, "Like Quinlan before, like the Schiavo case afterwards, we as a society worked through those questions about how you deal with medical technology and when it's appropriate to use, and when you stop. And obviously we're still grappling with those issues today." Watch this sneak peek to hear from Julia Quinlan, the mother of Karen Ann Quinlan, and Paul Armstrong, Quinlan's attorney; Bill Colby; and George Felos, the attorney for Michael Schiavo, the husband of Terry Schiavo. 

As always, HFA will also publish a book by experts to accompany the program, and like all of HFA's books, the 2012 publication easily stands on its own. Available for pre-purchase now, this 300- page book examines end-of-life ethics in innovative ways and includes chapters by physicians, ethicists, and other noted scholars. By taking a case-study approach, the book reinforces that real-life ethics situations occur daily in hospices and other institutions offering palliative and end-of-life care. Chapters include challenging cases involving issues of surrogacy; decision making when the patient is a child or adolescent; conflict between health care professionals and family; and palliative sedation. While each case is unique, each chapter shares the perspective that ethics continue to evolve.

Authors are clinicians and scholars working with end-of-life decision making every day--from prestigious bioethics centers, such as The Hastings Center, the MacLean Center for Clinical Medical Ethics, and the Yale Interdisciplinary Bioethics Center, to major healthcare settingssuch as the Memorial Sloan Kettering Cancer Center, Beth Israel Medical Center, and Children's Hospital Boston. Many of the authors serve on the boards or ethics sub-committees of prominent national organizations, including the Presidential Commission for the Study of Bioethical Issues, the American Academy of Hospice and Palliative Medicine (AAHPM), the Hospice and Palliative Nurses Association (HPNA), the National Association of Social Workers (NASW), and the American Academy of Pediatrics (AAP). Learn more here.

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Thank You HFA Sponsors

http://www.hospicefoundation.org/uploads/2012spring_book_sm3.jpgHFA is grateful to the Foundation for End of Life Care and Dignity Memorial Funeral Providers for underwriting End-of-Life Ethics. Additional support comes from Allen Mooney & Barnes Investment Advisors, LLC; Collaborative for Palliative Care; Columbus Properties; Hospice Choices; and Jewish Home Life Care.Has your organization considered becoming a sponsor? Showing your support for hospice and end-of-life care by sponsoring HFA's 2012 Spring Program is a low-cost, effective way to reach tens of thousands of health, clergy, social service and allied professionals nationwide. Your support of hospice professionals is a valuable donation to the quality of care in communities nationwide. Other audience members include professional academics, researchers, and undergraduate and graduate level college students.  

A participant in our fall program, Beyond Kübler-Ross stated that, "Your programs are excellent and offer wonderful education for hospice staff, volunteers and the community." Your organization will have exposure for an entire year to viewers of our two and a half hour educational program, taught by leading experts in the field. This year's topic is a must-see for any professional working in the field of bioethics, advanced or terminal illness. Estimated audience size for Hospice Foundation of America programs each year is 97,000, based on reports from more than 1,000 program sites nationwide and in Canada.

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Share Journeys Today

http://www.hospicefoundation.org/uploads/Journeys_image.jpgAs spring approaches, so do holidays and special days that may be difficult for those coping with loss.  While we sometimes overlook the impact these days may have on those grieving, Easter, Passover, Mother's Day and Father's Day all can be difficult holidays for the bereaved.  HFA's Spring Holidays special issue of Journeys brings the experts to your clients, giving helpful advice to those dealing with loss this spring.   Available for shipping March 1, our enews subscribers can receive 20% off this important issue by using the coupon code: [SIGN UP FOR HFA'S ENEWSLETTER BELOW TO RECEIVE FUTURE DISCOUNTS].  Don't miss out on this great resource for your clients! The sale ends March 15th.

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What’s New @ HFA’s Hospice and Caregiving Blog

http://www.hospicefoundation.org/uploads/blog2012_sm.jpgHFA’s Hospice and Caregiving Blog gathers and disseminates information useful to professionals and consumers from a single destination. Our goals are to inform, offer support, and generate online comments about important end-of life issues. Read some of the blog’s most recent postings:

Subscribe to the Hospice and Caregiving blog feed and follow us on Twitter.

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Self Study Course Available for Individuals

http://www.hospicefoundation.org/uploads/2011fall_bookcover_sm.jpgHFA's program, Beyond Kübler-Ross: New Perspectives on Death, Dying and Grief, is available as a self-study course for individuals. This program explores the most current theoretical perspectives on dying, death, and grief, emphasizing areas where understandings of dying, death, and grief have been challenged and developed since the 1969 publication of Kübler-Ross' epochal work, On Death and Dying.

 This self-study course ($50) has been approved for two-point-five (2.5) basic contact hours.  Included with your self-study packet is a full-length DVD (approximately 2 hours), a companion book, program guide (with program information), and detailed instructions. Continuing education credits are available for a number of professional boards, for an additional $25 fee online until November 10, 2012. Register today.

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This newsletter is sent to over 8,000 subscribers every month to keep you informed of what is happening in the fields of hospice, grief and bereavement, and caregiving, as well as what's new at HFA. Privacy Statement: In no case will we share e-mail addresses. See the full text of HFA's Privacy Policy.

This newsletter is published by Hospice Foundation of America
Amy Tucci, President and CEO
© Hospice Foundation of America 2012

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